TIME FOR NEW SOLUTIONS
THE GOVERNMENT AND IVY LEAGUE OFFERS WHAT SOLUTIONS?
One of the reasons I will be starting my text, Autism to Alzheimer's: Eighty Aggressive Approaches to Neuron Repair, is that after reading the incredibly useless materials coming out of the autistic medical and science grant system, I would expect nothing in the next ten years that would actually help my autistic patients or prevent future autism.
I once wrote to a kind and famous NIH clinician about who was doing "the most cutting-edge material." The chapter I was sent by this researcher was like a flashback to the 80's and not one word was useful clinically.
So below, I show a sample article that mocks caring parents who are trying to figure out what is wrong with their child and make creative interventions. Basically, they are doing what physicians and hardcore researchers should be doing! I applaud their dedication and exploration. Perhaps their findings only help their child 10% or not at all, but they are doing the work of exploration, and have more creativity in on hand then some government paper pushing mega centers show in a year.
So they do not do double blind studies that take 40 years and cost hundreds of thousands. Their kids are growing up and cannot wait for such pristine arrogant "evidence."
Novel treatments for autistic spectrum disorders
Levy SE, Hyman SL.
Children's Seashore House, The Children's Hospital of Philadelphia, University of Pennsylvania School of Medicine, Philadelphia, 1914, USA. Levys@email.chop.edu
In no area of developmental pediatric practice is there more controversy regarding the choice of treatment than related to children with autistic spectrum disorders (ASD). Complementary and alternative medical therapies (CAM) are often elected because they are perceived as treating the cause of symptoms rather than the symptoms themselves. CAM used for autism can be divided by proposed mechanism: immune modulation, gastrointestinal, supplements that affect neurotransmitter function, and nonbiologic intervention. Secretin as a therapy for autism is discussed as an example of how a clinical observation rapidly grew to a widespread treatment before well-designed studies demonstrated absence of effect. The plausibility for behavioral effect was not substantiated by clinical studies. CAM used for treatment of autism is examined in terms of rationale, evidence of efficacy, side effects, and additional commentary. Families and clinicians need access to well-designed clinical evidence to assist them in choice of therapies. [Bolding is mine.]
Ment Retard Dev Disabil Res Rev. 2005;11(2):131-42.M
To Parents Who Are The Loving & Tired Hero's,