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Information on Lyme Disease Risks: Near Heart Fatality in Researcher

Undetected Lyme disease nearly killed Duke researcher

Dr. Neil Spector, a breast cancer researcher at Duke Comprehensive Cancer Center, seemed healthy, but an undected and untreated case of Lyme disease nearly claimed his life.

He ...was always a picture of good health, but while practicing medicine in Miami in the mid- to late 1990s, something was wrong.

"I just felt like I was running on low octane," Spector said.

He learned that his heart was beating out of rhythm, but he couldn't imagine why.

"I lived in New England for a number of years, and I used to run in the woods, and I've been to Cape Cod. Could this be Lyme disease?..."

The classic mark is a rash that looks like a ringed bull's-eye target around the tick bite, but not everyone has it. Symptoms can often be confused with other medical problems.

One test showed Spector's exposure was extremely high, but a second test was negative. His doctors said he needed a pacemaker/defibrillator implant, which should have made him feel better.

"I didn't feel better," he said. "I kept feeling pretty bad."

Then, he developed arthritis and was given an antibiotic, which cleared it up. But it raised a question.

"Now, I've got arthritis that goes away with doxycycline, which is the antibiotic you use to treat Lyme disease," Spector said. "I mean, this has to be Lyme disease. That test had to be wrong."

Spector kept pushing to be tested for Lyme disease. Another test in 1997 confirmed Spector had the disease, but it had already caused damage.

After starting work as a breast cancer researcher at Duke in 1998, his heart continued to decline.

Last July, Spector's doctor put him on a heart transplant list, and within 36 hours, a donor heart was available. The surgery was a success...

Reporter: Allen Mask, M.D.
Photographer: Rick Armstrong
Web Editor: Kelly Gardner


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