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The NY Times and Lyme:
Limited Media Knowledge of Lyme Disease

To the NYTimes: Reporting Lyme Disease in the Media

Gentlemen:

First, I would like to thank you for sponsoring the Time for Lyme fundraiser last fall.

As you must know, your paper is read nationwide and is respected by many. For this very reason I would like to point out how important it is for correct information to be made available to the general public regarding Lyme disease and its many CO-infections.

Lyme disease is a killer! It is time for medical schools and universities to seriously give attention to educating medical professionals regarding Borrelia burgdorferi, Babesiosis, Ehrlichiosis, Bartonelliosis, Brucellia, Mycoplasmas, and the list goes on ...

As a national Patient Advocate for those who suffer the maladies of Lyme disease, I receive calls almost Every Day from someone who has just been diagnosed but their doctor does not know how to treat this disease.

Lyme disease is bewildering. Its symptoms vary drastically from patient to patient because of CO-infections. So many patients become suicidal because of the difficulty in finding a medical doctor who is educated in this field. It is imperative for the medical community to become informed correctly in methods of diagnosing and treating Lyme disease.

How many will have to die before attention is given to this life-threatening disease?

I would ask you to assign an unbiased reporter to research both sides of the political arena regarding Lyme disease. I mean, really delve down deep into the science and proven documentation. Not just discuss the political correctness between opposing parties.

It is appalling to discover so many patients infected with Borrelia burgdorferi (Bb) have been misdiagnosed and improperly treated.

It is time to update the medical books and give serious attention to the devastating affects of this disease.

I live in Central Florida. And yes, ticks are here too! We have the "southern strain" of Bb which comes from the Lone Star tick (Amblyomma Americanum). This tick is a very aggressive tick who crawls up trees in search of a blood meal. This tick has now ranged upward along the Eastern Seaboard all the way up to Maine and as far west as Texas!

Would you believe the CDC actually sent letters to veterinarians in Florida warning them to expect Lyme disease to present in small animals and to be on the lookout for it? The reason for this notification was mulch from the northern states had been distributed in Florida and it was found to be infested with ticks!

I would ask you, why didn't the CDC warn medical professionals to be aware of the spreading tick population and possible infection appearing in humans? After all, we play in the mulch too! Why wasn't a public announcement made?

As Lyme disease soars and medical expenses expand to unbelievable heights, it is time for this nation to wake up to the dangers this disease brings to all of us.

It is Time For Lyme!

Respectfully submitted,

Marvina Lodge, President
Florida Lyme Disease Network, Inc.
407-880-LYME (5963)
E-mail: LoveyOnLyme@aol.com

(Printed with written permission)


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